- They now have 1 cure!!! (for Pompei Disease), and
- They have 4 new treatments for different neuromuscular diseases
Although Ullrich isn't on that list, yet, this is still very exciting news because it could be in the near future. It is certainly possible in Caleb's lifetime.
Enjoy some of the photos from our day!
This is Caleb and his friend Ashley. She snuck up on him and scared him right before this picture.
Ashley, Caleb, and his buddy Alec.
Taking some time out to do a little golfing.
Caleb driving the golf cart. His favorite part of the day (and mine, too) was definitely riding all around the golf course.
Caleb and I with some of the Outback Crew. This whole day was a little ironic, given the previous post. There were tons of "Little Kangaroos" all over the golf course since Outback was sponsoring the event.
1 comment:
What great news! And what a fantastic fundraiser! That was a great result. Glad you had a good time. (I love the kangaroos at the golfcart coincidence, BTW!)
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