Back in Swimming!

Caleb recently started swimming again.  It is so incredible to see him and his instructor, Mr. Brett, work together.  He is able to do such amazing things in the water - walking independently, holding his breath for long periods of time, and SWIMMING!!!  I mean he is actually propelling himself in the water.  When we started on this journey when Caleb was 11 months old, we signed him up for it to just be water therapy.  He has completely exceeded our expectations.  At least half of my time of every session is spent with my jaw dropped open, just watching what he can do.  Anyway, enough of my mommy bragging :)  Enjoy the video!

Sleep Study

A couple of weeks ago Caleb went in for a routine sleep study.  One of the first signs of progression of Caleb's form of Muscular Dystrophy is usually sleep apnea and can often occur around the age of 5.  So we decided to get the sleep study done, even though he wasn't showing any signs/symptoms of apnea, just to make sure.  I'm happy to report that everything checked out A-OK, and no concerns were seen. 

Even better, Caleb was an absolute champ, and the sleep study itself was completely uneventful.  This was especially a relief after the one we did when he was 2, which was one of the worst nights of my life!    Click here to see what I'm talking about :)

Nighty-Night!

Caleb's Room

Caleb got ahold of the video camera the other night and wanted to give you a tour of his bedroom.

*Warning:  This video may cause motion sickness!

MDA Outback Golf Tournament

Last week Caleb was once again asked to represent the MDA at the Outback Golf Tournament.  This is always a really fun event - one that mommy looks forward to every year.  This year Jeff and Kylie got to join the festivities as well.  Such a fun day!  Here are some of the things he got to do.

Doing his duties of taking pictures with some of the golfers.

Getting interviewed by the TV station.

Having epic battles in between duties.

Taking a ride in the golf cart.

Oops, did we forget something?

More epic battles.

More pictures.  By the end of the day some of the golfers were getting ahold of some of Caleb's weapons (note the guy in the blue shirt).

Caleb even got to drive the golf cart!

Here's Caleb as he mentally prepares for his big wheelchair race :)

Here's the big race!  He was so excited.

Last Day of Kindergarten

Last week Caleb had his last day of Kindergarten.  *Sniff*  I can't believe his first year of Elementary School is done!  The time went by so quickly.  He had an amazing year with a fabulous teacher and an equally fabulous 1:1 aide!  He made so many friends in his class that accepted him for who he is right from the start.  And, yes, he was even part of a Kindergarten love triangle :)  We are looking forward to First Grade and all the new things he will learn.

This is a video of Caleb's class singing, "I am a Pizza."  You can see Caleb between the two ladies' heads.

Here he is getting his certificate of completion.

Caleb and Mrs. Salmon (Annick), his aide.

Mrs. Miller, his teacher

Caleb and Kelsey - his "one love", the one he is determined to marry :)

Leslie, who claimed Caleb was her "best friend."

Jenny, another adorable classmate who loved Caleb.

 

Star Wars at Legoland!

Last week we decided to take Caleb to Legoland to celebrate the fact that they combined 2 of his favorite things in the galaxy - Legos and Star Wars!!!  I'm not sure who had more fun, Caleb or us watching him revel in all the Lego Star Wars glory.  It really was amazing to see so many miniature scenes from all the movies made out of Legos.  It was also incredible to see how many thousands of bricks went into making each one.

Meeting Lego Darth Vader.  Caleb gave him a "high two" ('cuz they only have 2 digits :)

Daddy and Caleb decided to take on Chewie and R-2

Check out that right hook!

Last Game of the Season

Caleb had his last Miracle League game.  He ended on a high note - a HOME RUN!!!  We had such a great season and are looking forward to playing again in the Fall.

Caleb doing his infamous bow with Coach Matt.

Caleb with his trophy.  He was so proud :)

Here's the end of Caleb's Home Run

FIELD TRIP!!!

A couple of weeks ago Caleb got to got to the Sea Life Aquarium at Legoland with his Kindergarten class.  I was lucky enough to be able to go with them to help supervise some of the kiddos.  We had tons of fun and can't wait to go back.

Caleb pondering what to build with the legos

Taking a moment to say "cheese" with his buddy, Kelsey.

This was, by far, Caleb's favorite part.  While we were visiting, there was a scuba diver in the big tank hanging out with the fish.  Pretty cool!

 Caleb touching the starfish with the help of Mrs. Salmon, his aide.

Peek-a-boo!

Crazy Hair Day

We decided to go with the Darth Maul look!

 Caleb with his friends Kelsey and Sophie.  They have a sort of Kindergarten love-triangle :)

Here's looking at you, kid.

Sorry

Just wanted to apologize to all of Caleb's fans for being so absent lately.  I kinda let the whole blogging thing go by the way-side because I wasn't so sure how many people actually followed it.  Then at a Miracle League game last weekend, a woman came up to me and said, "Are you Caleb's mom?  I just wanted to tell you that I saw his blog and just LOVE it!  Thank you for sharing him with us like that."

And with that, I remembered why I had started this little bloggy-thing in the first place.  To share our wonderful, amazing, and inspiring little boy with the world.  To give you a glimpse at the joy that he brings to us each and every day.  To show other families who may be getting a new diagnosis that there is so much happiness to be had with these precious gifts we've been given.

So...

I am recommitted to posting more often!